Re: BB聽力測試

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loveyanpig | 2005-07-30 00:24
唉! QM好好人又好有經驗o既許醫生十月會離開QM, 出去自立門戶呀! 我睇左佢一次, 仲鬼死咁中意佢tim! 點知又要同佢say goodbye! :-(
MarchK | 2005-07-31 00:12
Hi,

我o既BB因為早產(28週出世),所以38週時做o左OAE,但 fail o左,一直以為他太細,所以唔準,上兩星期(44週)做o左ABBR都fail,雖然醫生未詳解報告,但話情況嚴重,已叫我排期到下葵涌做聽力訓練.

報告上寫住(兩隻耳):
"No clear wave V up to 100dBnHL clicks (AC) but cochlear microphonics were records."

依我理解份報告,BB可能連100dbn都聽唔到. 下星期三會見醫生,我已有心理準備,最擔心反而係驚情況太差,連用助聽器到幫唔到,都唔知點算.
DaisyWong | 2005-07-31 00:29
Hi loveyanpig,

之前睇報紙都有講過, 估唔到係真, 許醫生係我so far見過最好嘅醫生，佢好出名．　

我都好鬼死中意佢，好失落呀，以後唔知點算好 :-( :-( :-(
DaisyWong | 2005-07-31 01:11
Hi 稚言治語 / Shiba-Inu,

有關政府醫療運作，想問一問．

EMB inspector 曾經advice子喬去做兒童智能評估，叫我哋同醫院醫務社工講，安排轉介，我今日去咗搵醫務社工，佢哋話轉介一定要醫生寫紙，之前我都係這裡講過，醫生話佢唔覺得有咁嘅必要，咁我可以點做好 :-( :ranting:　吓吓搵私家，真係好唔得掂 :giveup: 　　

同埋so far子喬proof有弱聽後，點解都冇醫院醫務社工跟進，是否佢哋當作已交咗比EMB，因此唔再理？

子喬媽上
DaisyWong | 2005-07-31 01:27
Hi MarchK,

你嘅心情我絕對明白，宜家排期到下葵涌，果度專睇聽力出問題嘅ｂｂ，咁即係佢哋已ｆｏｌｌｏｗ緊你個ｃａｓｅ，所以唔洗太担心．

前面總有長遠道路，唔好氣餒呀，互相支持，多ｄ上嚟ｂｋ傾吓呀　　 :fighting1:
loveyanpig | 2005-08-01 14:30
Dear MarchK,

多d上來呢個forum, 呢度既有言語治療師提供專業意見, 又有好多好mama同妳一齊行呢條路!唔洗灰心, 希望在明天呀!

May God bless you & your BB!

yanyanma
Shiba-Inu | 2005-08-02 07:46
Hi MarchK,

Your baby's case is a little bit special and different from the other babies in this forum. However, as I have mentioned before, follow-up with all the medical/ hearing tests arranged for him/ her and the "real" hearing status will be revealed gradually so that u and the professionals know how to help.

報告上寫住(兩隻耳):"No clear wave V up to 100dBnHL clicks (AC) but cochlear microphonics were records. 依我理解份報告,BB可能連100dbn都聽唔到."
Your guess is NOT really true! ;-)

(1) The usual ABR test done in HK tests for high-freq (high pitch sounds) but gives no info on low- and mid-freq sounds. So no response at 100 dB nHL in ABR does not necessarily means hearing nothing below 100 dB since we have low-, mid- and hi- freq sounds in our environments and speech.

(2) Actually the most important info given by your baby's test report is "No responses.... .BUT cochlear microphonics were records" To put it simple, that means the sensory cells in the cochlea (inside inner ear, shaped like a snail shell) are working fine, but abnormal neural function was recorded. --- Well, don't misunderstanding my point as "baby has 'brain' problem" --- See point (3) below.

Usually for hearing impaired people, it's the sensory cells in the cochlea that are not working rather than the "nerve cells", and amplified sound drives the "sick" sensory cells to work harder and help. --- Since your baby's sensory cells are still normal, putting on hearing aids for your baby have to be monitored closely. --- See point (4)

(3) Since your baby is premature, there is a possibility that neuro-maturation is one of the underlying problems. So there is still hope that as baby grows and neural system matures, the test results can be improved.

(4) The audiologists in Ha Kwai Chung EMB will follow-up with your baby's hearing test and hearing aids fitting. They will NOT repeat ABR but will do some tests to see the actual responses of your baby towards diff sounds. The test results may or may not agree with the ABR test, because of points (1) and (2). Then base on their results, they will decide on the hearing aids fitting. If eventually h/a are fitted, follow the audiologists' guideline and see if baby is un-/comfortable with the amplified sounds or not. Chances of both scenario are there.

When will EMB see your baby and which hospital is following up? Hope my info are not too difficult to be digested! ;-) If u cannot understand my English, let me know.....
MarchK | 2005-08-02 10:57
Thank you so much for all of you, especially Shiba-Inul.

BB (栗子)10月會o係東區再做ABBR, 我真希望他隨著時間會有改善.其實BB早產已令我心身都好倦,o係他住院o個十個星期,每日都擔心o係早產BB身體上有潛在o既問題會被發現係栗子身上.經歷o左咁多,我唔想他再受苦.所以當知道栗子耳仔有問題時,真係非常擔心,漫漫長路,唔知自己頂唔頂得住.雖然知道有方法去改善,但他一定會比較吃力,辛苦.

另外,想問做耳蝸植入手術,如果兩隻耳有問題,會唔會做哂兩隻?
稚言治語 | 2005-08-03 11:18
Quote:
DaisyWong 寫道:
1. EMB inspector 曾經advice子喬去做兒童智能評估，叫我哋同醫院醫務社工講，安排轉介，我今日去咗搵醫務社工，佢哋話轉介一定要醫生寫紙，之前我都係這裡講過，醫生話佢唔覺得有咁嘅必要，咁我可以點做好 　　

2. 同埋so far子喬proof有弱聽後，點解都冇醫院醫務社工跟進，是否佢哋當作已交咗比EMB，因此唔再理？


1. 要到兒童體能智力測驗中心，必須有醫生紙。由母嬰健康院或私家醫生寫的也可以。這個"智能評估"，其實是一個整體發展評估，看看小朋友的大肌肉、小肌肉、認知、社交、手眼協調、語言理解及表達方面的發展有沒有問題。我認為現時子喬還小，除非你懷疑她除了弱聽外還有其他問題，否則可以等到差不多兩歲才做。歲半時(因為要排期，排得嚟就差唔多兩歲啦﹗)往健康院或請任何一位私家醫生寫紙即可。

2. 呢樣真係唔知，不如你問問醫務社工﹗政府啲政策(尤其係跨部門嗰啲)係好難明嘅，又成日都轉。唉﹗
MarchK | 2005-08-04 10:23
栗子情況比想像中還要差,以為最壞打算咪做耳蝸植入手術,點知都唔可行.

他一隻完全聽唔到,另一隻只聽得好少. 因為BB早產,受過多種創傷,如黃疸過高(max 試過299),令腦神經受損.

醫生話聲音耳蝸接收到但絨毛組織反射唔到腦神經,腦神經接收block o左同接收時間唔一致,所以即使他聽到聲音,都可能分辨唔到音準,話耳蝸植入手術唔適合他,唔駛諗.除了要用助聽器外,仲要靠手語輔助,因為助聽器的成較對他來說,未知可唔可以改善聽力,將來會入讀特殊學校.

已安排9/8去下葵涌作第一次見面,希望知多一點可以幫到他.

其他媽媽可以講故事俾小朋友聽,多溝通,我想知我有咩可以做去教育他(心身發展)?
:sleep:
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